Parents in the Long Covid Kids parent only support group express concern to their Doctors that their children have ongoing symptoms and may have organ damage, and are often told that Coronavirus does not affect children.
Children are regularly denied access to investigations with their parent's
concerns are dismissed.
Members of the Long Covid Kids group read the studies published for adults, and recognise the same symptoms in their children.
So will children get multiple organ damage from Long Covid?
It is a question that we just don't have the answer to.
Photo of members child.
Until paediatric services are available in the NHS Long Covid Clinics and are accessible at a local level we will continue to campaign for awareness and highlight the need for studies on children.
Long Covid Kids have made enquiries with the NHS for clarification and they are yet to respond.
One recent study on young adults gives parents further cause for concern.
"Young, low-risk patients with ongoing symptom British Medical Journal.
"Young, low risk patients with ongoing symptoms of covid-19 had signs of damage to multiple organs four months after initially being infected, a preprint study has suggested.1
Initial data from 201 patients suggest that almost 70% had impairments in one or more organs four months after their initial symptoms of SARS-CoV-2 infection"
"Two thirds (66%) of participants had impairment in one or more organ systems and there was evidence of multiorgan impairment in a quarter (25%) of individuals, with varying degrees of overlap across multiple organs"
LongCovidKids.org is a parent and patient-led campaign & support group for parents of children with Long Covid. Our story started with a short film on long-lasting symptoms of Covid in children & are working on The Long Covid Kids Study with PeopleWith