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Invest in Long Covid & M.E Research: Thousands of Children DISABLED, DISCHARGED, & HIDDEN FROM VIEW

Writer: Long Covid KidsLong Covid Kids

Our Asks


  • Develop a long-term strategy to fund biomedical research and treatment for Long Covid in adults and children.

  • Stop clinic closures—commit to long-term, effective care for Long Covid, M.E., and overlapping conditions

  • Train doctors and healthcare professionals - expand and sustain specialist services.



Sign The Campaign On March 15th 2025, International Long Covid Awareness Day For Adults And Children With Long Covid AND M.E


Today is Long Covid Awareness Day, a day for the community to stand together, raise our voices, and push for the change we desperately need. With millions still suffering and thousands of children left without care, this is our moment to demand action.

 

Our strength is in our numbers. Many of you have friends and family who ask, “What can I do to help?



Please sign our campaign supported by 38 Degrees today, and make sure at least 10 more people do the same. Every name counts.





Why Is This Important?


  • Five years after the start of the Covid pandemic, thousands remain severely ill - Many housebound or often bedbound, unable to attend school, work, or take part in daily life.  Disabled, discharged, and hidden from view.

  • Covid has left millions chronically ill, including over 100,000 children in England and Scotland (ONS data 2024).

  • Long Covid is not a historic issue - new infections and reinfections continue to increase the number of people developing chronic illness.

  • Long Covid can cause systemic damage, affecting organs, the immune system, and even the brain.

  • Half of Long Covid patients meet the criteria for M.E, a condition that, at its most severe, leaves people confined to darkened rooms, unable to sit up, eat or speak.

  • Instead of investing in care and research, the government is shutting down Long Covid clinics in England, leaving thousands without support.

  • As knowledge has advanced, NO additional funding has been allocated for Long Covid research - despite the increasing likelihood that further research could lead to effective treatments.


A fraction of the additional £26 billion in NHS funding announced for the next two years could change this by: 


  • Helping children and adults with Long Covid return to their daily lives, education, and work. Providing crucial support for young people transitioning into adulthood and meaningful employment.  

  • Preventing families and households from falling into financial crisis, allowing parents, caregivers, and those with Long Covid to stay in work while ensuring access to the care they desperately need





In Solidarity, Together For Long Covid and M.E


5 years of Covid infections has left millions chronically PHYSICALLY ill. My severely ill child is effectively being brushed under the carpet by a government seems keen to wilfully ignore the lasting, physically disabling impact of the pandemic."

Simon, full-time carer of a 13-year-old with Long Covid.


Together, we will make a difference for children and young people disabled by complex conditions, including Long Covid and M.E.



Poster titled Long Covid Kids with a mission statement. Sections include awareness, support, research, and action. Donate button shown.
Long Covid Kids - 4 Pillars

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